Deborah Dokken – An advocate for parents of gravely ill children: When Deborah Dokken gave birth to her daughter Abigail, she knew her life was changed forever. Like most first-time parents, Deborah and her husband, Tom, were thrown into the daunting role of constant caregiver, nurturer and protector. Abigail was born prematurely, however, and their parenting took place in a neonatal intensive care unit (NICU), where they watched their daughter struggle to survive.
Deborah soon realized that she not only wanted to make sure Abigail received the best possible care in the NICU, she also wanted be a participant, working in concert with her daughter's physicians, nurses and specialists. Although many of the hospital's caregivers acknowledged the importance of family involvement, however, there were some who made it difficult.
Related: Get to Know: The Initiative for Pediatric Palliative Care
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