100% Chance of Being Loved | NRL News Today: Despite being told Reid would “probably die within a year,” Marie said their goal was “to help Reid be as healthy as possible and live his life to the fullest in his home, surrounded by the people who love him.” They were told “phrases like ‘let nature take its course,’ and ‘we can put a DNR in his file before he goes home and then if something happens…’”
Marie added, “Now our sweet Reid is four years old. He may be differently-abled from healthy kids, but he is full of constant wonder and joy!”
When Marie was unexpectedly pregnant again, a geneticist encouraged them to have an amniocentesis because Marie carried the gene that could cause her baby to have MTM like his older brother, Reid. The geneticist suggested they could “keep their options open.”
Marie refused the amniocentesis and declared to all the people in that room, “Our son may have a 50 percent chance of having Myotubular Myopathy, but he has a 100 percent chance of being loved.”
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